Welcome to Billybob's Wildride! There will probably be a bunch of first time wild riders since Bobby plans to post this on Facebook for the first time, So let me introduce myself. I am Billybob, the wacky liver living in Bobby's upper left quadrant. Bobby started the "wildride" back in '07 to vent and communicate to people about the *wild ride*, but hardly ever posts on here anymore. Unless a CT scan comes back positive for a liver tumor, or bone tumor, or when he has some additional strange and bizarre medical diagnosis, and the once a year AA birthday. Which is today. Number 6. -6 years or 2192 days or 52,608 hours or 3,156,480 minutes...without a beer!! (or any other alcohol) So, to celebrate number 6, we are going to repost one way back from AA birthday number 2. Happy birthday, you big ol' lunker, and many more to come! Love, Billybob , the Lung brothers, mister HEART, the Gutz family, Mr. Spleen Mcqueen, Kidney one and Kidney two, "the Zombie monster" rib tumor, De Quervains pains, and all the Piggies who went to market! THE TASTE- by Billybob September 1, 2008 Six years and two weeks ago (September 10, 2006), Bobby kissed Sharon bye, grabbed his keys and headed out the door. He was on his way up to Golden, to Mount Olivet cemetery to visit Ardis' grave for just the second time. He stopped on his way at a convenience store for a can of beer and a pack of smokes. Back then beer was not available on Sunday, except the watered down version, 3.2 beer, because of blue laws, or unless you went to the bar. Bobby and Sharon live one block from a bar, but he never took advantage of it. Only an alcoholic would do that, right? He bought a pack of cigarettes, and a 24 ounce can of Budweiser. The clerk handed him his change, and he wheeled out the door, the cemetery being only a couple of blocks west. He had taken his fishing chair with him, and expected to stay awhile. He dismounted from the truck, the cemetery was vacant. He could not see anybody else, it being Labor day weekend, and a Sunday, the sun was warm, but not too hot, and the sky had an autumn feel to it. .. The fresh sod on her grave was taking hold now, beginning to knit after just 3 weeks. The fishing chair sunk in to the ground because the grass being over watered. He adjusted it, and managed to stop sinking. He had already lost 50 pounds on his way to lose a total of over one hundred in just 4 months. The abdominal pain had changed in intensity over the last month. It felt as if a dirty brick had been surgically placed in his abdomen. Every movement and vibration hurt. He had been trying to drown his emotional pain, but it increased his physical pain. It burned now. That weekend, he had not drunk any beer, unheard of for labor day weekend . He had been telling Sharon that he was close to quitting. Ardis' dying had convinced him to quit. He didn't want to die like her. A year prior, his brother had questioned him at the request of Sharon, about weather he though he had a drinking problem or not. He had come up with a logical explanation to Jeff as to why he did not have a drinking problem. People who have real drinking problems can't switch to 3.2 on Bronco Sunday at dad's house, and they can't ever stop at just one or two, right? Bobby had started buying 3.2 for the Bronco game since becoming very very drunk during the Denver bronco's loss to the Jacksonville Jaguars a few years back, and enduring a lecture from his father. He was embarrassed by it, so he made it a point to never take regular beer over there again. But lately, even 3.2 beer was getting him drunk, and he marveled at how amazing that was. So, he cracked this ice cold can of Bud, lit a smoke, and inhaled, and as he let out the smoke, he told himself to really take it in, the feeling. The taste. This was an experiment to really contemplate life and death. A taste test, if you will. Sitting here on Ardis' grave, pissed at the whole world because of his false perception that no one really knew or cared how much her death had destroyed him and Sharon, he drank. He smoked. He knew that his liver (me) was very sick. So far the doctors were all being fooled into thinking that I was fine, but Bobby knew better. Today, he enjoyed this feeling, and most of all, this taste. Just for a while longer. He had a saying back in his 20's that a cold beer, and a Marlboro were life's end all beat all, and that he wanted them as a dying wish. But today, he knew he would have to choose. If he chose the beer, he knew he would be giving up Sharon, but every time recently he had asked her if she was at the end of her rope, she just patiently said "not today, hun". She had been so patient in the weeks following Ardis death, especially since he was on a real bender and he had never done this before. He felt completely out of control. Like a car coming down a mountain with no brakes. He knew that choosing the beer meant choosing death. He gathered his cigarette butts, his empty can, and paper bag, and sat in the bed of the truck for awhile. The equivalent of two cans of beer never used to have this effect, but he didn't feel safe to drive, so he waited. He waited the prescribed amount of time required by law. More proof of not being an alcoholic,right? When he got home, he didn't have any thing more to drink the rest of the night. Yet more proof. Heh. The next day after work, he bought another 15 pack of beer. He just wasn't done quite yet. Rock bottom loomed just 7 days away.Bobby at Lutheran hospital-September 15, 2006 Post script: when Bobby did finally quit for good, he ran in to big trouble. Not knowing anything about the "DT's" or "the shakes" , he developed alcohol withdrawal syndrome and was hospitalized for 4 days in serious condition with Delerium Tremens, (Latin for "shaking frenzy") a potentially fatal condition resulting from rapid cessation of drinking alcohol. If you or a loved one has a drinking problem, NEVER try to quit drinking cold turkey. Excerpt from Elsevier Health Sciences:Withdrawal from other drugs which are not sedative-hypnotics such as caffeine, cocaine, opioids, etc. do not have major medical complications, and are not life-threatening. Withdrawal reactions as a result of physical dependence on alcohol is the most dangerous and can be fatal.
Solitary plasmacytoma is a large solitary focus of plasma cell proliferation.
This tumor has a median patient age of approximately 10 years younger than multiple myeloma.
Pain is the most common symptom. However, if the myeloma occurs in the spine, it will usually present with fast developing paraplegia and gibbous deformity due to the vertebral collapse.
Liver Animation
Portal Lobule- amazing science
Wildride---
WildRide-
F.A Q.
About me- Billybob
A Liver. A crazy, wacky liver. Living with my share of scars, but who doesn't? I don't want to bore you with all that, not when there's bone tumors, and De Quervain's tenosinovitis, not to mention this runaway arthritis stuff. Compared to all that, it seems like we have it not too bad down here in liverland.
Symptoms of Cirrhois of the liver-Billybob's troublesome condition
This is 'Not Billybob'- (bobby) where Billybob lives
Not feeling my best these days.
The Architecture of the Liver
The rib tumor
lytic lesion of the anterolateral left seventh rib
You'd think that 25 radiation treatments wouldn't amount to much of anything. It doesn't sound like a lot.
...25 trips to the hospital. We were wrong. We started the week before Thanksgiving after a month long delay because of a bad bad flu like cold I developed. They wanted a commitment, with as few absences as possible, so we waited. The coughing up blood and fevers subsided, then we started, and got our groove. I say WE because Notbillybob's wife, Sharon drove most days. I was just along for the ride. Well, after 10 treatments, the tiredness set in. Especially for her. Like a new part time job. Notbillybob feeling like a roast ham most days. Kind of like a sun burn inside your guts. He made a big mistake in eating jalapenos one night. Ooh, the burn. So, they asked the doc if the stomach was getting radiation. They said "lets pull up your treatment plan... Yes, see here, inside this red line. The treatment plan showed that it was. The innermost red line is the most radiation, the outer one is the least. The green one is in the middle. A good part of the stomach is even inside the blue line.
The pain was accounted for. They told us that they were also concerned with his platelet count. It was going down again. Down to 37! (Low is 150) It has since stabilized at 40. The thing is that the white cells, red cells, hematocrit are all low. Way low. Bilirubin is elevated. INR is elevated. Not billybob began wearing a mask to treatments. Don't need cooties at a time like this.
Then the really cold weather set in. I know, I know- it doesn't really cause colds and "death of pneumonia" like our moms used to say, but when you have cancer of the immune cells, and then your white cell count goes in the toilet as well...
Notbillybob is going to stay a hermit for the foreseeable future.
But SMILE!
New Years eve was treatment number 25. Graduation day! Graduation from LINAC U!
(LINAC is a Linear Accelerator, an IMRT radiation therapy machine)
The creator of Theme Planet is Michael Sorrmann, one of the world's finest digital artists. Bobby fell in love with this short film during endless Google searches for roller coaster tracks, and a way to describe the " wild ride"
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Bobby's wife Sharon had her long awaited posterior fossa decompression surgery June 12, 2006. The surgery has not yet had the desired effect of curing a 11 year long headache, a result of Chiari malformation and Ehlers Danlose syndrome.
Falling down is also a gift
Annika is the worlds bravest girl, Having survived a third liver transplant. Moreena, her mother writes this blog, and it is Bobby's favorite
Live Out Loud
My journey with the struggles of Chiari Malformation
DAANT
DAANT Miracle Aimee, a liver transplant survivor.
The real life
Nancy is an awesome liver transplant survivor.
Transplant Headquarters
Manu Varma
Had a kidney transplant in 2000, watched the field of transplantation swirl around me before and after, decided to start a blog about it.
HOW CAN I KEEP FROM SINGING?
Susan, a young mother writes about moving forward after a struggle with childhood illness, and ultimate loss and reminds us that this is just the middle of the night, not the end.
A MIDWIVE'S TALE
Live , Love, Laugh
Lace writes this blog about her brain tail, and is a Chiari survivor.
Chiari Malformation Blog
A brave fighter, Keesha illustrates her Journey through 14 surgeries. Ehlers-Danlos Syndrome, Tethered Cord Syndrome, Thoracic Outlet Syndrome have led her to become a patient advocacy specialist extraordinare.
Bobby's favorite nurseblogs
EMS blogs
Dr Au
Angel of death (c) 2004 Kristoffer Frisk is an artist who lives in a small town in northern Sweden called Harnosand. He is Bobby's favorite artist. This picture "the angel of death" is not a scary thing to Bobby, but rather a fact of life and reminder of one possible road, but not the current one. The current one is the road to a transplant, and an extension of his contract on earth.